. So, this disease is compared to the body turning to stone.
‘A five-month-old baby girl from the UK is turning to stone due to an extremely rare genetic disorder called Fibrodysplasia Ossificans Progressiva.’
People suffering from FOP can be bedridden by the age of 20, and their life expectancy is around 40 years.
Initially X-rays taken in April month revealed that she had bunions on her feet and double-jointed thumbs. Later they did their research in mid-May and underwent a genetic test to discover this disease.
“We were initially told, after the x-rays, she probably had a syndrome and wouldn’t walk. We just didn’t believe that because she’s so strong physically at the moment and she’s just kicking her legs,” Lexi’s mother Alex told HertsLive.
Due to this disorder, her condition will worsen swiftly while receiving a minor trauma. She cannot have any injections, vaccinations, or dental work. She also cannot give birth.
The condition of now has no cure as it makes it painful for Lexi’s parents. While scientists are working on the cure, solely funded by the FOP Friends Charity, Alex and Dave have received immense support from other parents who have children with FOP.
Source: Medindia
