Some of the common symptoms of Thalassemia (ranging from mild to severe and life-threatening symptoms) are
on the 8th of May 1994 in loving memory of George Englezos and all Thalassemia patients who are no longer with us (
). George was a scientist and son of TIF president and founder, PanosEnglezos. George suffered fromβ-thalassaemia major.
Ever since then, the Thalassemia International Federation organizes several activities for World Thalassemia Day to spread the information and management strategies of thalassemia (5✔ ✔Trusted Source
World Thalassaemia Day 2022 – May 8 | History, Theme, Significance, Quotes
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).
The striving motive of the day is to draw the global attention of the public, health professionals, authorities, and industries to augment the actions on the management of the disease through patient-centered care (1✔ ✔Trusted Source
International Thalassaemia Day
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).
International Thalassemia Day: 2022 Theme
The 2022 theme for International Thalassemia Day (ITD) 2022 is “Be Aware. Share. Care: Working with the global community as one to improve thalassemia knowledge” (4✔ ✔Trusted Source
INTERNATIONAL THALASSAEMIA DAY | The Theme For 2022 Has Been Announced!
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).
The global theme celebrates the power of knowledge as an open call for promoting actions against thalassemia and support for the best patient care. The campaign invites everyone to contribute to the responsibility of fighting against thalassemia through proper and right public education (4✔ ✔Trusted Source
INTERNATIONAL THALASSAEMIA DAY | The Theme For 2022 Has Been Announced!
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).
Need for Global Campaign
With the global rise in incidences of thalassemia and the lack of efficient prevention programs, basic knowledge of the disease and its prevention strategies must be conveyed to the public on this global day (4✔ ✔Trusted Source
INTERNATIONAL THALASSAEMIA DAY | The Theme For 2022 Has Been Announced!
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, 6✔ ✔Trusted Source
The International Thalassaemia Day 2022 Theme Has Been Released!
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).
It is estimated that over 80% of patients suffering from thalassemia in the developing countries have a lack of disease-specific knowledge, which contributes to poor health and management of the disease (4✔ ✔Trusted Source
INTERNATIONAL THALASSAEMIA DAY | The Theme For 2022 Has Been Announced!
Go to source).
The global campaign hence ensures that the entire patient community has equitable access to treatment resources for a better quality of life. Several organizations engage in hosting seminars, walkathons, fundraising events, posters, and expert talks on thalassemia to achieve a global fight against inherited blood disease (5✔ ✔Trusted Source
World Thalassaemia Day 2022 – May 8 | History, Theme, Significance, Quotes
Go to source).
The public may also participate in the world-wide drive by sharing their knowledge and experiences on thalassemia through social media using the hashtags #BeAwareShareCare, #ITD2022, and #InternationalthalassemiaDay (4✔ ✔Trusted Source
INTERNATIONAL THALASSAEMIA DAY | The Theme For 2022 Has Been Announced!
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How to Manage Thalassemia?
Common measures for the management of Thalassemia are as follows (7✔ ✔Trusted Source
Thalassemia: Complications and Treatment
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):
-
One may easily diagnose Thalassemia through a simple blood test – Hb electrophoresis or Hb A2. -
Although preventing thalassemia is difficult, it is a completely treatable disorder. -
General management of thalassemia includes blood transfusions, chelation therapy, and in some cases, bone marrow transplant. -
Avoid high iron content foods as frequent blood transfusion is required. -
Maintain a healthy diet and routine exercise. -
Proper management of the disease may help the patients lead a long and productive life.
It is thereby important that people all around the world join to promote the right knowledge on thalassemia and the treatment accessible for all the patients, including the underserved communities, who are suffering from the disease (4✔ ✔Trusted Source
INTERNATIONAL THALASSAEMIA DAY | The Theme For 2022 Has Been Announced!
Go to source
).
“There are so many people out there suffering from thalassemia and they need our help. Let us step out and donate blood”( 5✔ ✔Trusted Source
World Thalassaemia Day 2022 – May 8 | History, Theme, Significance, Quotes
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References :
- International Thalassaemia Day
– (https://thalassaemia.org.cy/international-thalassaemia-day/) - International Thalassaemia Day
– (https://www.nhp.gov.in/international-thalassaemia-day_pg) - What is Thalassemia?
– (https://www.cdc.gov/ncbddd/thalassemia/facts.html) - https://thalassaemia.org.cy/news/international-thalassaemia-day-2022-theme-announced/ – (https://thalassaemia.org.cy/news/international-thalassaemia-day-2022-theme-announced/)
- World Thalassaemia Day 2022 – May 8 | History, Theme, Significance, Quotes
– (https://guidely.in/blog/world-thalassaemia-day) - The International Thalassaemia Day 2022 Theme Has Been Released!
– (https://www.ithanet.eu/latest-information/news/3046-the-international-thalassaemia-day-2022-theme-has-been-released) - Thalassemia: Complications and Treatment
– (https://www.cdc.gov/ncbddd/thalassemia/treatment.html)
Source: Medindia
